Jim Kelly Headed To Washington
He’ll be asking Congress for their support on a new bill.
That bill would support better newborn screening to hospitals.
The Newborn Screening Saves Lives Reauthorization Act of 2013 assures federal funding so newborns can receive a blood test for fatal diseases that, if caught early, can be diagnosed and treated early. If the bill is not reauthorized by Sept. 30 the federal funding for newborn screenings could end. Senator Chuck Schumer and Jim Kelly are trying to get the bill extended through 2018.
Kelly’s son Hunter died at eight years old in 2005 from a fatal genetic disease that, if caught early, can be treated.