Jackson acts like any one year old would. He crawls, he says mama and dada. He just doesn't look like your ordinary one year old. Jackson has a form of anencephaly, a rare neurological condition that means he is missing part of his brain and skull.

Over time, people have made comments that have been unsettling for the mother and father of Jackson.

It’s baffling to hear or see other people’s opinions on our baby that have never met him, that somehow know how he thinks, how he acts, how he feels, how much of what he does is voluntary or involuntary, how he is always in pain, and that we are selfish parents for not choosing to have an abortion, and for having a Facebook and a Go Fund Me page for him. When we first learned there were concerns for Jax during the pregnancy, we were given the options of carrying him to term or having an abortion because there was the unknown issue. Truthfully, I will never understand how choosing to carry Jaxon and give him a chance to survive could ever be considered ‘selfish'.

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